Riley is under the Autism umbrella. More specifically a diagnosis of provisionary PDD-NOS. Basically a mild form of autism. They remain optimistic that if we continue with his intervention, including add more services (occupational therapy, preschool, continue with speech therapy, and group therapy) that he will be able to function normally. We are so lucky to have such great insurance and that CA has such great help, but we can't help but feel sad. We thought everything was okay, since he had made so much improvement, but as the title states, we spoke too soon. It's a very mild version it, so worst case scenario would probably be special ed classes. Intervention can help and change that though, so we are going to be doing everything they suggest and then some. Just wanted to update.. I know it's been such a roller coaster of emotions, and I apologize for the posts of his delays, then he's fine, then delays, then fine again..... I'm just so thankful for our speech therapist, and his urging to get this evaluation. He really has been the sole reason that Riley has done so well....

:hugs I can understand a little bit of sadness - but he's such a good, smart boy - I'm so glad you have such excellent people taking care of you guys :yes

Oh gosh Trey!!! I'm so sorry you've received that news!!! I really hope and pray that the future therapies will help him to succeed in his language development. :) (L) I'l be thinking of you all!!!

I totally understand how you feel Trey :hugs

If you need anyone to talk to, I am always here (L)

I think it's normal to be a little sad, but know you have an awseome little boy there. You got early intervention, and really that's the biggest mistake a lot of people make.

If he has a normal IQ and just mild learning disabilities, keep in mind he doesn't HAVE to be in special ed classes. It's whatever his LRE will be when he starts school.

:hugehug You and Ryan are awseome!

I think it's normal to be a little sad, but know you have an awseome little boy there. You got early intervention, and really that's the biggest mistake a lot of people make.

If he has a normal IQ and just mild learning disabilities, keep in mind he doesn't HAVE to be in special ed classes. It's whatever his LRE will be when he starts school.

:hugehug You and Ryan are awseome!

Yeah his cognitive skills are right on par... and actually his language is great too, just 2 months behind as far as development goes. It's his behavior, social skills, and lack of using words AS communication that they decided to give that diagnosis. He also has gotten really picky and has a bit of an aversion to strange textured food, which we thought was normal considering he is two.. but that all together adds up.

Thanks for the support ladies! I guess I was just relieved to think things were over, only to realize they aren't. I love that little turd more than life itself and a diagnosis doesn't change a thing... I am going to be dropping out of school though to work with him. I can always get a degree, but I can't always spend this valuable time with him...

:hugs

Have you heard about the Son-rise program?

http://www.autismtreatmentcenter.org/

I think it's normal to be a little sad, but know you have an awseome little boy there. You got early intervention, and really that's the biggest mistake a lot of people make.



ITA :yes

Early intervention is so crucial! We did early intervention with Noah at barely 2 yrs old. There are so many parents out there who are in denial and refuse to get help. I have seen it first hand :no. You and Ryan are wonderful parents, and Riley will do great :).

I think it's normal to be a little sad, but know you have an awseome little boy there. You got early intervention, and really that's the biggest mistake a lot of people make.

If he has a normal IQ and just mild learning disabilities, keep in mind he doesn't HAVE to be in special ed classes. It's whatever his LRE will be when he starts school.

:hugehug You and Ryan are awseome!

:yes:yes

:hugs I can understand a little bit of sadness - but he's such a good, smart boy - I'm so glad you have such excellent people taking care of you guys :yes

I agree with Becca and Riley is so lucky to have 2 extremely wonderful parents that are going to do right by him. :hugs

Yeah his cognitive skills are right on par... and actually his language is great too, just 2 months behind as far as development goes. It's his behavior, social skills, and lack of using words AS communication that they decided to give that diagnosis. He also has gotten really picky and has a bit of an aversion to strange textured food, which we thought was normal considering he is two.. but that all together adds up.

Thanks for the support ladies! I guess I was just relieved to think things were over, only to realize they aren't. I love that little turd more than life itself and a diagnosis doesn't change a thing... I am going to be dropping out of school though to work with him. I can always get a degree, but I can't always spend this valuable time with him...

AWW Trey, I can sort of know how you feel. Jacob makes me do the he's fine no he's not fine thing too. It makes it that much more frustrating I think then if they just fit either the "average" mold or the autism mold.

I am thinking good thoughts to you guys. I have the same plan in mind if Jacob gets officially DX. I won't be finishing school if he needs me more then future students. :) The waiting game sicks but at least now you KNOW what you are dealing with for certain and can focus in on it. Many many hugs to you and that adorable little guy of yours!

:hugs


I have complete faith that Riley will continue to do great. He has parents that care and will do anything to get him help.

Ditto to everything Michelle said! :hugs

I'm sorry Trey :hugs
You know...you are such a wonderful mom who is willing to go above and beyond for her little man..and not just you, but your dh too :yes, that right there will be one big thing that Riley will need.

I'll be thinking about you guys :hugs

I am so sorry you guys got that news. It sounds like you are more than committed and you've also got great resources for working with him and helping him though and that's great! He is in some great hands! Sending tons of :goodvibes your way.

You guys are such wonderful parents! you have all the right in the world to post as you do cause we care!

I am so glad that the little guy has parents that are helping him with everything!

:hugs

:hugs

I can totally understand the sad feeling. You guys are doing GREAT by doing this for him early on. You guys will be in my thoughts.

More specifically a diagnosis of provisionary PDD-NOS. Basically a mild form of autism.

On a positive note, I have a neice that was diagnosed PPD when she was about 2 years old. She is now almost 17, she has her license, she's an average student, has a good social life, she's intelligent, can beat most adults at any computer game, has a special relationship with animals and is an all around great kid. There was a time that her mom was devastated and thought there was no future for her daughter but with work, patience and lots of love my neice has blossomed into a beautiful young lady. There are very few people that would even think there is/was something "wrong" with her. Yes, there were preschools, special classes, therapy and some disappointments along the way but she overcame the obstacles in her way and will live a fulfilling life. Next year she will graduate from high school.....and her original doctors said she wouldn't. I hope this makes you feel a little better.

You and your dh are so proactive in your sons health. Im so glad that you two are his parents. :hugs

Noah, as you know, has Asperger's/PDD-NOS. We feel incredibly blessed, because it has been proven that children with Asperger's and PDD-NOS are incredibly intelligent. Noah's teacher has told us he is the brightest 5 1/2 year old she has ever met. He is actually very advanced for his age. Also, he is such a social butterfly, when in fact, children who are on the spectrum are more likely to be socially challenged. This all stems from early intervention and extensive therapy. Please don't feel devastated :hugs. Just remember that this is very mild, and he will live a completely normal life. Just keep doing what you and Ryan are doing.

:hugs Trey, you are such a good mom. You are fortunate that you picked up on signs early enough to help him. He will do well!! :hugs

You are a great mommy. I have no experience in this so i can not offer any advice. :hugehug

Trey,

I don't remember if you posted talking about it, but what did you think about Jenny McCarthy's methods and strategy for her child... most specifically the use of 3Lac and other supplements etc. for helping with some of those things?

Like I said, if you all ready posted talking about it, good or bad, I am sorry... I was just doing some research on this, and her son's progress/recovery is quite remarkable. :yes

Whatever happens, best of luck to you, your husband, and the little man. We're all here for you. :hugs

First of all, :hugehug. It's understandable that you two are feeling a little sad. You are an amazing mother and your husband is an amazing father. You two have done an outstanding job in noticing the signs early on and getting Riley the services he needs.

You're in my thoughts :hugs, but I also wanted to applaud you for early intervention and how proactive you've been. My aunt and uncle never got my 2 cousins help when they were young which is so sad because it is apparent to our family that they are both autistic and things could have been largely different if their parents would have gotten them therapists. Stay strong!

:hugs

Have you heard about the Son-rise program?
Yes, I have actually! My parents were in the process of doing that when they met another doctor (the one that works at the non-profit my sis works for) and so they are doing what he suggests at the moment. I haven't looked at it in depth yet though, so I will! I do know that it's VERY expensive though. My parents were about to fork over $30K for the program until they met this new doc who had some new ideas as well. I am definitely interested in researching everything and anything I can though! Fortunately, we live in the Vista School District and we were told today that they have an excellent Autism and preschool program, so that will be fantastic once Riley turns 3.

AWW Trey, I can sort of know how you feel. Jacob makes me do the he's fine no he's not fine thing too. It makes it that much more frustrating I think then if they just fit either the "average" mold or the autism mold.

I am thinking good thoughts to you guys. I have the same plan in mind if Jacob gets officially DX. I won't be finishing school if he needs me more then future students. :) The waiting game sicks but at least now you KNOW what you are dealing with for certain and can focus in on it. Many many hugs to you and that adorable little guy of yours!
Yeah the ups and downs are the worst.. BUT, I am glad we went and found it out. I know what I need to do, so it almost seems easier this time.. like having a baby the second time, still scary, but you know what to expect and what you want a bit more so it's not as scary as the first time....

I can't drop out of school due to my scholarship stipulations though... so I am just going to finish this semester out and then take some time off after that....

On a positive note, I have a neice that was diagnosed PPD when she was about 2 years old. She is now almost 17, she has her license, she's an average student, has a good social life, she's intelligent, can beat most adults at any computer game, has a special relationship with animals and is an all around great kid. There was a time that her mom was devastated and thought there was no future for her daughter but with work, patience and lots of love my neice has blossomed into a beautiful young lady. There are very few people that would even think there is/was something "wrong" with her. Yes, there were preschools, special classes, therapy and some disappointments along the way but she overcame the obstacles in her way and will live a fulfilling life. Next year she will graduate from high school.....and her original doctors said she wouldn't. I hope this makes you feel a little better.
Thank you so much for your story, it was very heart-warming and really made me feel optimistic!! :hugs

Noah, as you know, has Asperger's/PDD-NOS. We feel incredibly blessed, because it has been proven that children with Asperger's and PDD-NOS are incredibly intelligent. Noah's teacher has told us he is the brightest 5 1/2 year old she has ever met. He is actually very advanced for his age. Also, he is such a social butterfly, when in fact, children who are on the spectrum are more likely to be socially challenged. This all stems from early intervention and extensive therapy. Please don't feel devastated :hugs. Just remember that this is very mild, and he will live a completely normal life. Just keep doing what you and Ryan are doing.
I didn't know that his diagnosis included PDD-NOS. I am still figuring out what exactly it is (moreso what it isn't if you know what I mean! :lol)... Thank you for the support though, it means a lot! :hugs

:hugs Trey, you are such a good mom. You are fortunate that you picked up on signs early enough to help him. He will do well!! :hugs
Thank you and thanks for the gift too. You have been a great support from the start about this and your words are always uplifting and motivating Ellen. Thank you!!! :glomp

Trey,

I don't remember if you posted talking about it, but what did you think about Jenny McCarthy's methods and strategy for her child... most specifically the use of 3Lac and other supplements etc. for helping with some of those things?

Like I said, if you all ready posted talking about it, good or bad, I am sorry... I was just doing some research on this, and her son's progress/recovery is quite remarkable. :yes

Whatever happens, best of luck to you, your husband, and the little man. We're all here for you. :hugs

I have not.. we are going to try these therapies for a bit and see how they go, but we are going to research a gluten free diet during that time too, and I think that's one of the methods she used.. I have not heard anything about those particular supplements (I have heard of others that help regulate sleep though), so I will look into those as well, thank you!!! (L)

Thank you so much to everyone for you support! I know it's not the end of the world, and with everyone being so optimistic, it helps me feel that way too. I just want my son to have a wonderful life, and thinking of what my brother has struggled and thinking of Riley going through that too just breaks my heart all over it again... I am going to be starting therapy again too, and just focus on myself and playing and learning with Riley. I (L) you all and thanks again for being such good friends and always having an open ear!!! :lovestruck

:hugs I'm sure with your persistence that he will do wonderfully!! He is so lucky to have parents like ya'll!!

Keep your chin up and I'll be praying for ya'll!!! :hugs

Also I wanted to add... a friend of mine here has a child with autism and they are doing the gluten free diet and he has improved LEAPS AND BOUNDS with the diet and schooling!! It's incredibly! I actually have short conversations with him now which we didn't and weren't able to do before. He counts with me and will spell his name, and I'm not around him as much as family is so I know he's much more comfortable now!!

Be confident that you can and will work through these obstacles and the hard times will be a thing of the past!!! :hugs

Riley is under the Autism umbrella. More specifically a diagnosis of provisionary PDD-NOS. Basically a mild form of autism. They remain optimistic that if we continue with his intervention, including add more services (occupational therapy, preschool, continue with speech therapy, and group therapy) that he will be able to function normally. We are so lucky to have such great insurance and that CA has such great help, but we can't help but feel sad. We thought everything was okay, since he had made so much improvement, but as the title states, we spoke too soon. It's a very mild version it, so worst case scenario would probably be special ed classes. Intervention can help and change that though, so we are going to be doing everything they suggest and then some. Just wanted to update.. I know it's been such a roller coaster of emotions, and I apologize for the posts of his delays, then he's fine, then delays, then fine again..... I'm just so thankful for our speech therapist, and his urging to get this evaluation. He really has been the sole reason that Riley has done so well....

He'll be just fine :yes I can totally understand the bit of sadness :hugs With the early intervention you are doing, I have NO doubt Riley will be fine. He's lucky to have such pro-active parents!

As a side note, you know Phil. When he was a child, he was in special ed classes for a learning disability. His mom told me that therapists basically said he would have problems being successful as an adult. Well, he is VERY smart and capable and no one would even know about his challenges if I/he didn't tell them. I notice it sometimes (he can't pronounce certain words right, etc), but it's so slight. So even if Riley has this challenge, that doesn't mean he can't lead a perfectly normal life like someone who doesn't :yes (I know you know that, but just thought I'd share to confirm that thought and hopefully make you feel better :hugs)

You both are so proactive with him. I know he will do great!!!
A few things that I saw from our brief time at Rachel's was great! He makes eye contact, he greets people, he smiles when he is happy with someone/something. He is tactile(Had no problem petting a crazy, jumping, slobbery dog) His comprehension is great. I have known "normal" children that had less speech them Riley and they were in the 3-4 range.
Speech all comes in time. :lmao I must be the worst teacher but I do now personalilty plays a BIG role in speech. I feel some kids are pressured to do so much, so young,
I started talking early and was always outgoing. My sister didn't really speak until 3. She is shy. She now has two degrees and is one of the smartest people I know. She was considered mild autistic.
I am sorry about the up and downs. He is a great kid and will do just fine. xoxoxo

:hugehug
He'll be ok. We went through this and honestly, if you are pro-active and on the ball about everything, A LOT can happen in a short period of time! Don't let anyone tell you no and stay strong. Feel free to PM me if you ever need to talk!

So good to hear that you have all the support you need to help lil man progress! You are a wonderful momma and I know you will do everything in your power to give Riley the best life possible! You guys are always in my thoughts.

You know I'm here for you! I know exactly how you feel. Tristan's official diagnosis thus far is PDD-NOS also. Please, please, please feel free to PM me anytime. I have been down this road, and well, I'm just here if you need me.

:hugs It sounds like you're doing all you can do, and everything is going to be great. You're such a good mom for picking up early on this and being proactive about it.

You're a wonderful mommy and Riley is lucky to have you....He will grow up to be an AMAZING man....have you talked to the doc about the GI issues too? I'm still praying for ya'll....:hugehug

:hugs Trey, you guys are such a great parents, I have no doubt he will get the best treatment possible, You guys will be on top of things, he is a great smart boy and that will help him tremendously!