View Full Version : angry


cameron_ambers
04-25-2008, 05:48 PM
So I took my daughter to the Dr. today (she had her first appt with the Neurologist today). Her Ped. sent the referral because she is worried that since she is 8 months (will be 9m on the 5th but at the time of this appt. she had just turned 8m) she wasn't able to sit on her own and she wasn't wanting to stand, and when put up in the standing position she would pull her legs up to her chest so that her butt hung further down. So she set forth the paperwork (got to love the military and paper trails) to see if there was something not (lack of better words) firing right in her brain. Well 3 weeks went by and we finally saw the Neurologist. He checked her out and had some concerns about her limbs. He said that they were slightly rigid and he was also concerned about the fact that she curls her toes, and when she got excited she fisted her hands (apparently you can do this too much when you are a baby). He wants to have her seen by a Physical Therapist to see if that will correct everything. But at the same time he wasn't ruling out mild cerebral palsy. Well that just crushed me there.

Back story, my daughter was conceived on Birth Control which i cont. to take for 1 month not knowing. So we knew there could be side effects because of that.

Well DH is over in Kuwait, this is are first child together, he has two previous 1 he never saw but maybe once a month and that was for a weekend, and the other he has never seen (not by his choice but that is another topic). So really he goes with this is his first child he has been able to be a father too. So I told him, just because I wouldn't want him to keep this from me if we were reversed. And it crushed him. He blames himself for not being here, not being able to choke/yell/scream at the Dr. and make him rethink his words. I told him over and over it wasn't his fault but still he won't listen to reasoning. I also tried telling him, that if PT works than there is nothing wrong, that she is just slower physically because she was sick for so long (basically from 4-5 months she was sick they don't know with what). I just don't know what to do. I don't know how to make him understand its not his fault and that everything will be ok.

Today has just been a really shity day. And I really hate the Navy for him being so far away just because im selfish and want him here to hold me.

*edit* the Dr's all agree she is above average on small motor skills and verbal. And the neurologist said that he didn't think there was anything that he could see wrong with her brain developmentally (granted he was just looking at her and examining her)

glass1/2full
04-25-2008, 05:53 PM
So sorry for your shitty day! I wish they had more answers for you!

FTCWifey
04-25-2008, 06:05 PM
They aren't going to do an MRI??? You should be DEMANDING an MRI.

KevnSue
04-25-2008, 06:22 PM
I agree, they should be doing an MRI. My daughter was born with heart problems, because I didn't know I was pregnant when I went to go get x-rays from having a neck problem, and I was put on all kind of meds. After about 3 weeks I found out I was pregnant and the doctor said that she might have complications and she did up until she was 5, nothing terrible thank god and her heart condition went away with time it took care of its self. I made the AF get me an appointment with a specialist ( it was a while ago 20 yrs to be exact I think it was called champus or something like that and the AF wanted to do open heart Surgery with no anastasia) and she got all her tests done. So my advise would be to demand everything.

I am so sorry you are going through this without your hubby though it must be so hard on both of you. hugzzzzzzzzzzzzzzzzzzzzzzzzzz

cameron_ambers
04-25-2008, 06:28 PM
The Dr. said that he could order and MRI but all they would do from that would be to order PT... so he was going to skip the MRI right now, have her do PT for 6 months, and then come back in, if the PT didn't work he would get an MRI and do more testing. If the PT worked than he wouldn't have to put her through the not so comfy feeling of an MRI.

FTCWifey
04-25-2008, 06:41 PM
Not necessarily! It could show something else! I really think that he should be proactive rather than reactive.

hollyrhodes
04-25-2008, 08:09 PM
The Dr. said that he could order and MRI but all they would do from that would be to order PT... so he was going to skip the MRI right now, have her do PT for 6 months, and then come back in, if the PT didn't work he would get an MRI and do more testing. If the PT worked than he wouldn't have to put her through the not so comfy feeling of an MRI.


I am fixing to be a Physical Therapy Assistant as soon as I get to take my state test but I worked in a Peds setting for my clinicals and just so you know I have seen PT do alot of amazing things. Sometimes kids just dont develop as soon as others and just need some help. I think that PT will be good for her and PTs alot of times can identify other problems or might suggest that you should go ahead and do the MRI. Dont be afraid to ask the PT questions.

Also if you arent satisfied with what the Dr. is saying you have the right of a 2nd opinion so dont be afraid to go get it if you think you need it.